People who are unfamiliar with celiac disease may think we active celiacs aren’t quite up to the challenge that other athletes are. Football, golf, tennis, running—all of these take major skill and athleticism in their own way. But once someone with undiagnosed celiac gets the correct diagnosis – it’s life changing – even for an athlete. If you doubt me—take a look at some of these examples: College Success This week the Dallas Morning News profiled the second-string quarterback at the University of North Texas. Nathan Tune got on the team as a walk-on three years ago and has been a on the bench ever since. His college coach is proud of him for his patience and sticking it out with UNT, saying he could have given up. “Tune had an excuse to give up football in celiac disease,” the article says. “The disease forced him to give up sandwiches, pasta and fast food last year. He stuck with it, though, and after adapting to the condition, he moved up the depth chart to become UNT’s backup quarterback.” – Dallas Morning News Because of a recent injury to the starting quarterback, Tune was able to start against one of the […]

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New research suggests certain genes could make a perfect mix inside our bodies to create celiac disease. But which genes are they? A new one has been added to the list.

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A wild case showing the complicated dance between celiac disease and health insurance. The question: which came first the celiac or the insurance. My answer and rant is– it shouldn’t matter.

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Cool end to a quirky story involving disappearing, technology and the gluten-free diet.

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New research out Friday looks deeply into President John F. Kennedy’s autoimmune disorders and how undiagnosed celiac disease (also an autoimmune disorder) likely caused even more health troubles. The senior medical officer on the USS George H. W. Bush aircraft carrier Dr. Lee Mandel has a particular interest in presidential medicine.  He conducted his own research and investigated Kennedy’s medical records which were released in 2002.  American Medical News reported Friday says the research* found diagnoses of Addison’s Disease and hypothyroidism — both autoimmune disorders. “‘I saw the common thread that other people had commented on casually,’ Dr Mandel said in an interview. ‘I think he did have an autoimmune syndrome.’” “Autoimmune thyroid disease coexists with Addison’s disease in two-thirds of cases. APS 2 typically occurs in early adulthood, at around age 30, the age Kennedy was when Addison’s disease was diagnosed, Dr. Mandel said.” – American Medical News The report also says the autoimmune issues ran in the family: JFK’s sister Ethel also had Addison’s Disease, and his son John F. Kennedy, Jr. had Graves’ disease. “Kennedy also had intestinal ailments likely caused by undiagnosed celiac disease,” Dr. Mandel said in the story. Dr. Peter Green, Director of the […]

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Enter your gf stuffing recipe in this contest – the winner gets a gluten-free freebie from the Linden Hills Co-op in Minneapolis. Looking for a bread stuffing– like a gluten-free Stove Top. Deadline 9/25!

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If healthcare reform actually happens in this country right now, will it help or hurt the treatment of the people we love who have celiac disease? This post explores some issues celiacs have with health insurance and whether reform will actually help.

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Gluten-free food at college, cheap mac and cheese and handling the drama of the holidays– while on a gluten-free diet.

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I haven’t been that adventurous with my celiac daughter to places like Chipotle and Noodles & Co. who have gluten-free options.  I really should be better about it.  So recently when we were running errands I saw a Noodles & Co. and went for it. Rice Noodles at Noodles & Co. Here’s how I worked it out — we went there at about 11:15 a.m. before the lunch rush.  I asked if they still had the rice noodles and they said yes.  I asked if they cooked in fresh water — they said yes.  So I explained our gluten issues, she put on the ticket that this was a “gluten allergy” (which was fine– I know some people don’t like using the word allergy in relation to celiac– but in this case it gets the point accross quickly with their cooks) to reinforce that the rice noodles couldn’t be cooked with any other water.  And they knew which toppings my daughter could have by pulling a list they had right under the cash register. Now keep in mind – and if you have read this blog before you know — my daughter is picky.  So we went with the butter […]

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If not being able to eat all of the deep fried foods at the Minnesota State Fair has got you down– now’s the time to take another look. Here’s a hint: french fries, beer and even brownies! YUM!

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